by Lindsay Grohowski
July 21, 2023
Communication allows us to express our thoughts, needs, and emotions, forging connections and building relationships. Children and adults with com...
by Lindsay Grohowski
May 4, 2023
All parents worry about their child’s future. When you have a child with a disability, there are often extra complicated questions and some startli...
by Alana Miller
January 3, 2023
Now that we have had some time to sit and process, we have another big Brayden update. On December 21st, we visited Dr. Theis, a neuro-optometrist....
by Alana Miller
August 16, 2022
Pull up a seat and let’s chat!
We haven’t updated you since March. If I can be honest…when your kid has been put under for multiple tests and...
by Alana Miller
April 27, 2022
Michelle, the mom behind Mama Bear for Rare, received her daughter’s diagnosis less than two years ago, in the midst of a worldwide pandemic.
by Alana Miller
April 25, 2022
I have been trying to figure out how to succinctly get this all out and landed on a month by month update! If you are new here Hello, we are so glad to have you! If you would like to read about our story to find out how we got where we are today you can find that Blog post here .
by Alana Miller
March 28, 2022
Darren was born on May 3rd, 2009. For the first eleven months, life was normal. Around a year and a half old, Darren’s parents noticed he was bab...
by Alana Miller
March 10, 2022
In our conversations with other families and parents of children with disabilities, many have uttered the words “my pregnancy was as normal as coul...
by Alana Miller
February 21, 2022
Sam, now 19 years old, was born a micro preemie meaning he was born weighing less than 750 grams or before 26 weeks gestation. Sam’s mom, Kelli, s...
by Alana Miller
January 25, 2022
Raising Brandon
Alana and I had the distinct pleasure of talking with Kathy Johnson about her journey raising her son Brandon who is diagnosed wi...
by Alana Miller
January 15, 2022
Hello! We are Alana and Lindsay, the owners of Say Hello Threads! We wanted to introduce ourselves to our followers, both old and new. Alana is cu...
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